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Patient Advocacy & Engagement

At BioMarin, we have been focused on treating rare diseases and conditions for more than 20 years and we have been doing it through close collaboration with patients and patient communities. We recognise the strategic value and the importance of integrating the patient voice across the entire process, starting at research and development and continuing systematically even after a medicine is approved to best serve unique needs of patients and their families. Our Patient Advocacy and Engagement teams collaborate with a broad range of patient communities across multiple geographies to make sure that patients’ voice is integrated into everything we do.

Patient Organisations

Learn more about some of the patient advocacy and support groups in the disease areas where we work.

Community Awareness Days

Learn more about some of the awareness days organised by the patient community.